As a thank you to The Sensory Spectrum subscribers, I’ve created these business cards you can hand out to strangers who may not be understanding or compassionate to your child. As a mom of two kids with SPD, I get it. Strangers can be quick to judge, and we already manage enough.
Thanks for joining me and The Sensory Spectrum community.
Your fellow SPD parent,
Jennifer
To download, right click and save the following link:
I am sitting here hunched over trying to type this as I am crying because I feel so very hopeless and overwhelmed!! I am a single mom of 4 kids 3 girls and 1 9-yr old boy diagnosed with sensory Processing disorder in August. That was after fighting with the schools for 2 1/2 years trying to convince them that he needed an assessment because there was more than just “behavioral issues” going on with him and I knew it. I have 4 kids, I can handle melt downs and tantrums but this.-no…this was different. Now that I have an official diagnosis — I’m left feeling alone, confused – alone, and I don’t know what to do. I cannot continue to fight like I did for the past 2 1/2 years without risking losing my job, which would lead to me losing my home….WTF DO I DO? Where do I go? We don’t live in a big city with a lot of options!Everybody seems to move so slow. OT therapy STILL has not been started yet!
Hey, Natasha. There are loads of parents in the same boat. Trust me, you are not alone!
While you’re trying to ramp up with everything, I highly suggest you join my closed parent group, where parents ask each other questions and share their personal knowledge/experience to help others. Go to http://www.facebook.com/groups/voicesofspd . Ask to join and I’ll approve you.
Hello Natasha – You are Not alone. I have 2 children who both have issues. My son has SPD & I fought with the school also. I found a private occupational therapist who helped us sooo much. I know you said you work but just keep plugging away on the computer & find anyone in the area who can help. The more information & support you have the better. The state will also provide an advocate to go to school with you. If you have a children’s hospital around – they can probably suggest some help. Just keep fighting. I could fill this page with really weird things my son does – at times I want to pull my hair out & a lot of people don’t get it BUT there’s also a million funny things he does that other kids don’t do. Just try to focus on his strengths – you are doing the best you can – take comfort in that 🙂
I’m so glad to find this site. My 10 year old son has sensory integration and we have had the same school issues. I have cried and celebrated every succes since he was diagnosed when he was five. Accomodations are very hard to follow up without an IEP. He is a very special guy. We continue advocating for him every day. Some days are a real struggle, but some others are great. We haven’t finished figuring out all the pieces of the puzzle but we are blessed with his life. Our SPD kids are a blessing even though they don’ t fit the mold.
Your love for your son is evident from your comment. He is lucky to have you… I’m sure as lucky as you feel to have him. That’s certainly how I feel about my own sensory kiddos 🙂